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Osteonecrosis - Avascular necrosis support |
A "road map" for using our website
and Yahoo Community site
and Yahoo Community site
ON/AVN Road Map
This article is designed to help you understand and navigate between our organization’s sites. I used the plural form of “site”
because in effect, we do have two sites. However, we are ONE organization, one group which uses both sites. They are both
under the banner of The ON/AVN Support Group Int’l Association, Inc.
Here they are, explained:
Our Website ~
http://avnsupport.org
This is our main website, where you are right now, which is like our business card to the world! It is the place where all those
seeking help with AVN land, sooner or later. Of course, our website is designed to tell the world a bit about AVN: what is it, how it
affects us, and what we can do about it to help make our lives livable again. It invites all those who wish to become a member of
our organization to join us.
It is a static site, meaning, there are no places on it where organization members can interact with one another. There are some
survey pages and feedback forms that invite people to send in very limited info, but that is not what is actually meant by
‘interactive.’ If we relied upon our website only, then people with AVN would miss out on a wealth of information which is so vast
that our website could not readily or easily contain it all! So, we had to find a system where we could truly interact with each
other, and a place in which to store our vast libraries of information. Our website is therefore also a doorway to our interactive site,
or place on Yahoo, our Yahoo Community, which is private and by invitation only. Once a person joins our organization, they are
invited to join our interactive Yahoo community, which is secure from hackers, spammers, scammers, and disruptors of all types.
Our Yahoo Community ~
http://health.groups.yahoo.com/group/avnsupportgroupinternational/
This is where you will find more information on AVN and so many other topics that it would be very difficult to list or store them
all on our website. Did you know that if you printed out our entire list of Links, for example, that it would take well over 100 sheets
of typing paper? That’s a lot of links!
I think one of the best features in our Yahoo community is our Message Board, where people come to share their experiences and
knowledge, ask questions, and bond with their fellow members. When you are diagnosed with a rare ailment and get very little
understanding from all those around you, it is a very comforting thing to be able to connect with someone else who has AVN, and
who really knows how you might feel. And, we come together to share so many new things going on in the world of AVN that it
would be a shame to miss out on it all! It’s the ability to communicate with each other that is so rewarding, something that cannot
happen on our website (which, for all intents and purposes is like reading a book).
Also, there are many other features in our Yahoo community that are not only useful, but some are entertaining as well. We have
our Links, Files, and Database areas which are all where our information is stored. We like to think of them as our libraries of
information, because that is what they truly are. Take the time to browse through those areas and you will see there are links and
papers on just about every topic there is concerning AVN and/or dealing with chronic illness. Many members were able to get
SSDI approval very quickly, for example, because they took the time to read the info they found in our community’s libraries.
So, we have something for everyone. If all you want is to refer to our website now and then, that’s fine. It’s here for your
convenience and you do not have to join our organization to read through our website.
But, if you wish to really ‘dig in’ and get involved in a more interactive way, and to avail yourself of a great quantity of good
information and a lot of moral support, then you should also join our Yahoo Community.
If you ever have any questions on anything to do with our organization or our Yahoo community site, please feel free to write to
me at avnrie@avnsupport.org
Please remember that while we do not charge anything to join us, your donations would be greatly appreciated, and are needed.
Please take a moment to view our Donations page.
April 30, 2007
Copyright April 2007
This article is designed to help you understand and navigate between our organization’s sites. I used the plural form of “site”
because in effect, we do have two sites. However, we are ONE organization, one group which uses both sites. They are both
under the banner of The ON/AVN Support Group Int’l Association, Inc.
Here they are, explained:
Our Website ~
http://avnsupport.org
This is our main website, where you are right now, which is like our business card to the world! It is the place where all those
seeking help with AVN land, sooner or later. Of course, our website is designed to tell the world a bit about AVN: what is it, how it
affects us, and what we can do about it to help make our lives livable again. It invites all those who wish to become a member of
our organization to join us.
It is a static site, meaning, there are no places on it where organization members can interact with one another. There are some
survey pages and feedback forms that invite people to send in very limited info, but that is not what is actually meant by
‘interactive.’ If we relied upon our website only, then people with AVN would miss out on a wealth of information which is so vast
that our website could not readily or easily contain it all! So, we had to find a system where we could truly interact with each
other, and a place in which to store our vast libraries of information. Our website is therefore also a doorway to our interactive site,
or place on Yahoo, our Yahoo Community, which is private and by invitation only. Once a person joins our organization, they are
invited to join our interactive Yahoo community, which is secure from hackers, spammers, scammers, and disruptors of all types.
Our Yahoo Community ~
http://health.groups.yahoo.com/group/avnsupportgroupinternational/
This is where you will find more information on AVN and so many other topics that it would be very difficult to list or store them
all on our website. Did you know that if you printed out our entire list of Links, for example, that it would take well over 100 sheets
of typing paper? That’s a lot of links!
I think one of the best features in our Yahoo community is our Message Board, where people come to share their experiences and
knowledge, ask questions, and bond with their fellow members. When you are diagnosed with a rare ailment and get very little
understanding from all those around you, it is a very comforting thing to be able to connect with someone else who has AVN, and
who really knows how you might feel. And, we come together to share so many new things going on in the world of AVN that it
would be a shame to miss out on it all! It’s the ability to communicate with each other that is so rewarding, something that cannot
happen on our website (which, for all intents and purposes is like reading a book).
Also, there are many other features in our Yahoo community that are not only useful, but some are entertaining as well. We have
our Links, Files, and Database areas which are all where our information is stored. We like to think of them as our libraries of
information, because that is what they truly are. Take the time to browse through those areas and you will see there are links and
papers on just about every topic there is concerning AVN and/or dealing with chronic illness. Many members were able to get
SSDI approval very quickly, for example, because they took the time to read the info they found in our community’s libraries.
So, we have something for everyone. If all you want is to refer to our website now and then, that’s fine. It’s here for your
convenience and you do not have to join our organization to read through our website.
But, if you wish to really ‘dig in’ and get involved in a more interactive way, and to avail yourself of a great quantity of good
information and a lot of moral support, then you should also join our Yahoo Community.
If you ever have any questions on anything to do with our organization or our Yahoo community site, please feel free to write to
me at avnrie@avnsupport.org
Please remember that while we do not charge anything to join us, your donations would be greatly appreciated, and are needed.
Please take a moment to view our Donations page.
April 30, 2007
Copyright April 2007
board page or message does not necessarily reflect the views of Osteonecrosis / Avascular Necrosis board SGIA, Inc.”). The information on our site is provided with the understanding that we are not engaged in rendering medical or SGIA, Inc.”). The information on our site is provided with the understanding that we are not engaged in rendering medical or information on our site is provided with the understanding that we are not engaged in rendering medical or professional medical services or advice. understanding that we are not engaged in rendering medical or professional medical services or advice. not engaged in rendering medical or professional medical services or advice. medical services or advice. We assume no responsibility for any choices that you may make for your own medical care. Information included in a message board should not replace necessary medical consultations with a qualified health or medical professional to meet your individual health or medical needs, or those of your loved ones. What we share here on our site is from members’ experiences and personal opinions only and is not to be used as a substitute or to replace your own doctors’ medical advice. You are urged to consult with and to abide by your own doctor(s) medical advice. We do not verify the information placed on any message board on our site and, therefore, cannot verify or judge the merits or lack thereof, of any information, suggestions, ideas, opinions, or advice. Neither ON/AVN SGIA, Inc. nor any ON/AVN SGIA, Inc. agents or representatives make any representations with respect to the contents hereof and specifically disclaim any implied or express warranties of merchantability or fitness for any particular usage, application or purpose. On our site, we prefer to base our message board discussions on only FDA approved treatments, medications, procedures, medical guidelines, etc. If a treatment, medicine, procedure or medical modality is not FDA approved then we ask you to please find another resource where you may discuss same. Materials copyrighted by ON/AVN SGIA, Inc., may be downloaded for personal use only. By accessing our site, you agree to hold ON/AVN SGIA, Inc., its assignees, licensees, owners, officers and directors harmless from any loss, claim or damage arising from your use of any of the information and ideas contained on the site, including following suggestions or advice posted on the message boards/web pages. |
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