Welcome to our Pain Survey page
My email/ member name is:
(please fill out this one bit of info!
Thanks!)
Please tell us a bit about your AVN. What joint or joints
are affected with it right now?
Describe your pain at the onset of your AVN.
That is, what your pain was like when you
were first diagnosed (or what led you to seek
medical help)
Hold down CTRL key to choose
multiple answers
How would you describe your pain in terms of
duration when you were first diagnosed?
On a scale of 1 to 10 with 10 being the worst pain you've ever
felt in your whole life, how would you rate your pain at the time
of diagnosis? (type your text in box below)
When do you feel your pain was at its
worst? (choose no more than 3)
At that point in time, were you offered anything to relieve your
pain? If so, what was prescribed to you? (also describe any
alternative treatments such as physical therapy, etc.)
At that point in time, do you feel your doctor believed how
bad your pain was, and if so, was he helpful? (do you feel
he was knowledgeable about AVN pain)
No
Did you feel your doctor knew about AVN in a way that left
you feeling confident he could help you?
No
If you had a 'less than good' experience with your first
doctor regarding pain issues, did you remain with him or
seek another doctor?
________________________________________________________________________

Now, let's talk about post-surgical pain. Most of us have had surgery or
multiple surgeries. Please describe what your pain was like after a surgical
treatment.  These include Core decompressions, FVFGs, joint replacements,
osteotomies, hemiarthroplasties, debridements, etc.
(If you need to fill out
another form(s) for additional surgeries, just fill in the following sections. Please make
sure your email address is on any additional forms so we know whose forms they are.)
What surgeries have you had to date
for your AVN? Please list year of
surgery as well... (just enter your text
in box below)
Note:  please pick just one surgery to talk about. If you
had more surgeries, then please come back and fill out
another survey form. (see note above) Thank you!
On a scale of from 1 to 10, how would you rate your pain while still in the
hospital?
While in the hospital, was your pain
treatment adequate and/or successful?
What type of pain relief or medications were you on while in the
hospital?
Do you feel you had adequate pain
management after you went home
from the hospital?
No
How would you describe your pain after you
went home from the hospital? What was it
like for the first 2 weeks?
(multiples are OK)
Describe the level, strength and character of
your pain after the first month post-op:
Please describe your pain if it has been a year or
more since your surgery.
Over all, what side effects do you feel you
suffer(ed) from AVN pain?
Let's talk about physical therapy (PT) for a moment.  As
most of us have been made aware, PT is essential after
most bone surgeries to help get our muscles back into
good working order. Please tell a bit about your own PT.
Include what type, for how long, and where you went for
it (if in-home, please tell about frequency and for how
long in the text box below)
No
No
One last question!  In your own words, how would you describe AVN pain in a
way that would make anyone -- including a doctor or other medical
professional who does not seem to believe or know about it -- really
understand what it is like? Please try to limit your words from 50 to 60 or so.
Thank you so very much!
Counter
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Please note: All survey submissions become the property of the
ON/AVN Support Group Int'l Association, Inc., and we reserve the
right to use this information as we see fit for research purposes.

Copyright 2005 - 2006 - The ON/AVN Support Group Int'l
Association, Inc.
Disclaimer:

The web pages and message boards at our site are for informational and entertainment purposes only. Material placed on any page or message board does
not necessarily reflect the views of Osteonecrosis / Avascular Necrosis Support Group International Association, Inc. (“ON/AVN SGIA, Inc.”).  The information
on our site is provided with the understanding that we are not engaged in rendering medical or professional medical services or advice.

We assume no responsibility for any choices that you may make for your own medical care. Information included in a message board should not replace
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pages.


Pain Survey
ON/AVN Support Group Int'l Assoc., Inc.
If you have ON/AVN (osteonecrosis/avascular necrosis), then
you know what living with severe pain is like. Fortunately for
them, not everyone else
does know, unless or until they get the
disease themselves. Often even medical professionals do not
know about AVN pain.  They may think they do, but the harsh
reality is that they can
not really know unless they happen to be
unfortunate enough to get AVN themselves. That is why this
survey is so important, members. This is our chance to tell the
world what our unique brand of chronic pain is truly like!

Please answer the questions by clicking with your mouse. A highlighted
choice will remain highlighted. For multiple choice entries, just hold
down your CTRL key as you choose your answers. Some boxes are text
fields -- type in your answers. You do not have to give out your
personal identifying information; all completed forms will be sent directly
to our office (nothing will remain on the web server). We will send our
collected info to various medical research organizations which show
interest in our findings. As we go along, I will post which
institutions/organizations are involved. Many thanks to all of you who
participate in our Pain Survey.
(please remember to click on Submit at the end!
Reset is to clear the form so you can fill it out again if you made some errors)
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Year of birth
How long have you had AVN?
What is the cause of your AVN?
Text box
Type your text in text box
Yes
Yes
I went to another doctor
I stayed with my doctor
Text box
Text box
Text box
Yes
Do you feel you had adequate PT?
Yes
Were you prescribed any PT?
Yes
Text box
Text box