Editorial
The ON/AVN Support Group Int'l Assoc., Inc.
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The web pages and message boards at our site are for informational and
entertainment purposes only. Material placed on any page or message board does
not necessarily reflect the views of Osteonecrosis / Avascular Necrosis Support
Group International Association, Inc. (“ON/AVN SGIA, Inc.”). The information on our
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we share here on our site is from members’ experiences and personal opinions
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- Over the years, I have found us AVN’ers to be a very tough lot:
filled with determination not to let this disease completely ruin
our lives, and with burning hope for some good quality of
living some day being restored to us, we are very special
people. For the past 10 years, the ON/AVN Support Group
Int'l has been an ever-growing , self-supporting community
cheering each other on and helping to educate one another
along the way. For this reason, I find it especially difficult to
ask for donations. Accustomed to doing it all by ourselves, it is
very hard for us to have to ask others to please help us, but
the plain truth is that we need this organization. Furthermore,
we cannot do this without your help. The truth is, it costs
money to host a site and to run an official organization and we
cannot do this all by ourselves. Also, we are on the verge of a
new and very important research project with the Hospital for
Special Surgery in New York We need to raise at least
$170,000 for start-up fees; we need to do this now if we are
ever going to have any hope for some real answers, and for a
long awaited and much hoped for cure.
We need your help. A small portion of your donation will go
towards keeping our organization going; the lion’s share will
go towards our research project.
AVN strikes people at any age, from infancy to the golden
years. As I said above, there are usually very few to no
warning signs that AVN is at work, silently destroying our
precious bones and joints. By the time the pain sets in, our
jobs are in peril, our incomes are severely interrupted, and our
medical expenses skyrocket through the roof. Painful surgery
after painful surgery with long recovery periods is the usual
answer, but often times, not for all. Unfortunately, people
under the age of 55 all too often have a very difficult time
finding a surgeon who is willing to do a joint replacement
because any age below 55 to 60 is considered ‘too young.’
Artificial joints have a shelf life, so many doctors do not
recommend doing them on younger patients. Usually a joint
can be replaced only twice in a person’s life time; so, you can
see why an association like ours is so important. Stuck in a
world of pain and confusion, AVN patients need a support
system and a voice so very, very much. We need to educate the
entire world about AVN and what it can do to a person, and to
his family; we need to help people find the knowledge that
they need, and to help point them towards adequate medical
care. This is what it is like to live with a rare, little known, yet
so totally devastating illness.
A great many of us got this disease from taking a certain group
of powerful medications; although very helpful and useful,
these steroidal medications can bring about AVN in some
people. Science has yet to tell us why this happens to some,
but not to all who take these drugs. Please believe us when we
tell you that our new research project is vitally necessary, if we
are ever going to find the answers we need, and perhaps one
day, a cure.
The ON/AVN SGIA, Inc., has long been the voice for AVN
sufferers the world over, and we need everyone’s help to keep
on spreading the word. We need your help to help us make our
new research project more than just a dream: we need it to be
a reality, and soon.
We absolutely need to continue our work for all those touched
by AVN, because it is far too important to ignore. Please help
us to continue and to go on helping all those with this most
destructive and painful bone disease. Your contributions are
greatly appreciated, more than you may ever realize. Please
feel free to use our new Pay-Pal donations link (below); it is
totally secure and you can use your credit card. Please visit
our Donations page as well, and don't miss our Research page.
We are counting on you now more than ever before.
Thank you from all of us, and God bless you for your caring
and generosity.
